Advocacy Archive

Getting Out of the Silo

Have you ever found yourself driving along a country road and spotting a Silo in the distance? If so, did you find yourself wondering what was inside?  Was it corn, barley, wheat, or some other grain? Was it something that might eventually end up on the table for dinner? Unless the farmer/silo owner made some

Some things to ponder on World CML Day

*UPDATED 9/22/17 – This blog post first appeared in September 2105.  Today, 9/22, is a day known well among those of us in the CML community. It’s a day set aside for awareness activities and a time to call attention to the many challenges faced by anyone living with Chronic Myeloid Leukemia. Over the past

Turning Awareness into Action.

Throughout the month of September, blood cancer awareness activities and events have been going on around the world. Just days ago on 9/22, we observed the “Super Bowl” of awareness for the Chronic Myeloid Leukemia (CML) community with World CML Day. The collective hope is that someone, somewhere, would learn more about CML and better

Reflections on 9/22 – From Awareness to Action

Tri-fect-a /trīˈfektə/ – a run of three wins or grand events. September is an “awareness” trifecta at my house. September 22 is CML Awareness Day and the entire month is designated Leukemia Awareness and Childhood Cancer Awareness month. While I’m honored to have the privilege of guest writing the blog post for the National CML


A room full of people whisper quietly as music softly plays in the background. Images flash upon a screen revealing a smiling kindergartener sporting a mortar board and tassel. Others appear showing a confident young man speaking to a group of people; a groom holding the hand of his bride; a father reading a story

Sticks and stones may break my bones BUT…

For many of us, it is easy to finish the phrase “Sticks and stones may break my bones but words can never harm me.” This children’s rhyme, attributed to an 1862 publication of the African Methodist Episcopal Church, was meant to encourage any victim of name-calling to ignore the taunt, avoid retaliation, and to remain

We’ve Got Parity! How ’bout you?

For many of us, our high school days are nothing more than a faint memory. For others, they’re as fresh as yesterday – or at least last May! No matter how vivid those memories may be, there will be things said or something we hear that bring them flooding back. Some are pleasant, while others……not