Information Archive

Some things to ponder on World CML Day

*UPDATED 9/22/17 – This blog post first appeared in September 2105.  Today, 9/22, is a day known well among those of us in the CML community. It’s a day set aside for awareness activities and a time to call attention to the many challenges faced by anyone living with Chronic Myeloid Leukemia. Over the past

Turning Awareness into Action.

Throughout the month of September, blood cancer awareness activities and events have been going on around the world. Just days ago on 9/22, we observed the “Super Bowl” of awareness for the Chronic Myeloid Leukemia (CML) community with World CML Day. The collective hope is that someone, somewhere, would learn more about CML and better

Connection. It’s Priceless to Say the Least!

For most of us, it is not too difficult to recall a time in life when we felt left out, misunderstood, or alone. As human beings we long for a connection with others. Connection strengthens us; helps us face life’s challenges; and deepens our appreciation for those who share common interests and experiences. When we’re

Reflections on 9/22 – From Awareness to Action

Tri-fect-a /trīˈfektə/ – a run of three wins or grand events. September is an “awareness” trifecta at my house. September 22 is CML Awareness Day and the entire month is designated Leukemia Awareness and Childhood Cancer Awareness month. While I’m honored to have the privilege of guest writing the blog post for the National CML

ACUTELY Aware

A room full of people whisper quietly as music softly plays in the background. Images flash upon a screen revealing a smiling kindergartener sporting a mortar board and tassel. Others appear showing a confident young man speaking to a group of people; a groom holding the hand of his bride; a father reading a story

Are You In?

Have you ever asked someone “are you in?” when planning a trip or activity? It’s quite likely that you may be nodding your head as you read this and saying “yes!” These three words are found in all types of conversations but never more profoundly when one is in need of a true friend’s support

Sticks and stones may break my bones BUT…

For many of us, it is easy to finish the phrase “Sticks and stones may break my bones but words can never harm me.” This children’s rhyme, attributed to an 1862 publication of the African Methodist Episcopal Church, was meant to encourage any victim of name-calling to ignore the taunt, avoid retaliation, and to remain

Shine!

When you were a kid, did you ever take a flashlight and aim it toward the ceiling to see the sphere of light it would cast? Or, use it to signal a neighborhood friend using Morse Code?  I do! I also remember the sound of my father’s voice saying “please turn the light off –

CML Patient Advocates: Tous unis, Tous uniques (All United, All Unique)

CML can be a very lonely disease. It’s not uncommon for a patient to never meet another person with our rare leukemia. Slowly, and very surely, this is changing. More and more CMLers are getting together in online patient forums and through the National CML Society’s CML Connections groups and other events. It’s an overpowering

Ponatinib PACE Trial Infographic

A few months ago, the FDA approved Ponatinib for patients with chronic, accelerated, or blast phase chronic myeloid leukemia (CML) and Philadelphia chromosome-positive acute lymphoblastic leukemia (ALL). The accelerated approval was based on results from the PACE (Ponatinib Ph+ ALL and CML Evaluation) trial, presented at the American Society of Hematology’s annual meeting. The primary end